Early Childhood Technical Assistance Center
The Early Childhood Technical Assistance Center , located at the University of North Carolina at Chapel Hill, supports the strengthening of state and local service systems to ensure that children with disabilities and their families receive high-quality, evidence-based, culturally appropriate, and family-centered support and services.
Regional Center Of The East Bay
Regional Center of the East Bay works in partnership with individuals and agencies to plan and coordinate services and supports for people with developmental disabilities, family members, and community leaders in the Alameda and Contra Costa counties. They seek to meet the needs of families by providing information and services that are community-based, flexible, accessible, and responsive to each unique situation.
Top Autism Websites Recommended By Parents
Searching for autism information on the web can be overwhelming. The word autism alone results in over 64 million hits on Google. So, where do you turn to for the most relevant information and resources when there are so many different options? We polled parents of Eden II participants, asking them this question, and these were the top 10 results:
1. www.autismspeaks.org -One of the leading autism science and advocacy organizations. Autism Speaks provides a comprehensive resource guide for all states. The site also boasts an impressive list of apps that parents may find useful, including games that focus on communication and social skills.
2. www.autism-society.org -Another great site that includes helpful resources for those with autism, family members, as well as professionals. Autism Society also gives updates on the latest autism news and press releases.
3. www.disabilityscoop.com Sign up for Disability Scoops e-mail news to receive the most current updates on developmental disabilities. Disability Scoops experts have been cited by multiple online news sites, including USA Today and People.com.
4. www.autismnj.org -Run by a network of professionals and parents, Autism New Jersey strives to provide New Jersey residents affected by autism with the most up to date information, including info on Health Care and insurance mandates in New Jersey.
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What To Do Next
- Attend one or more parent support groups, or join a parent email listserve: Parents can be a wonderful source of support and information.
- If you dont already have one, get a proper diagnosis you will need it to secure appropriate services. Some practitioners will give you a softer diagnosis in order to spare your feelingsthis is not actually a kindness, because it will impede your ability to get the services your child needs and is entitled to.
- Contact your states Developmental Disabilities program and apply for services. Be persistent.
- Contact your local school district and ask about school programs. See what they have to offer.
- Find a local physician who offers an integrated medical approach to autism. Some physicians will be open to medical and nutritional testing and medical and nutritional treatments, but others will not find one who is willing to help your child, as opposed to just monitoring the severity of your childs problems. Do not take your child to a physician who does not support you or respect your viewpoint.
- Attend the Autism Research Institutes free online webinars and continuing education events.
- Make sure you still find some time for your other children and spouse/significant other. Having a child with autism can result in many challenges, and you need to be prepared for the long term.
- Continue trying to learn all you can. Good luck!
Financial Resources For Healthcare
Medicaid is a program jointly funded by the state and federal governments that provides health coverage to certain groups of people who qualify. Qualifying individuals include low-income adults, children, pregnant women, elderly adults, and people with disabilities, but the rules differ from state to state because each state regulates its own Medicaid program.
The Medicaid Reference Desk is another helpful resource to learn more about your state’s Medicaid benefits, a glossary of terms, and answers to frequently asked questions.
CHIP provides low-cost insurance to children in families that do not qualify for Medicaid. There is no enrollment period, and coverage for qualifying individuals can start at any time.
Parents or caregivers of children under the age of 18 with disabilities can check with Social Security to see if they qualify for Supplemental Security Income payments. SSI payments can provide monthly payments to help meet the needs of children with disabilities.
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Parent Resources: Autism Society
The Autism Society may be one of the most comprehensive resources with just about everything you need to know about ASD.
Around for more than 50 years, the Autism Society has a mission of helping those on the spectrum enhance their quality of life while ensuring that these individuals are treated with respect, dignity, and are seen as valued and appreciated members of society.
This resource includes everything from updates in regards to COVID-19, ASD background information including causes and diagnosis, how to get involved in autism awareness, and information about public policy. They also have an entire section dedicated to living with autism, which includes topics such academic success, community inclusion, future planning, and how to navigate services.
Autism Society also has a that can be helpful for families that have a member on the autism spectrum including:
The Autism Society also offers a national helpline and real stories from individuals on the spectrum.
Autism Support Groups For Parents Families & Children The Ultimate Guide
Many parents have found in enormous benefit in Autism Support Groups for families. These have given much needed encouragement, comfort, and advice. In this article we discuss the benefits of joining one as well as helping you find one in your area.
In order to help parents discern the most supportive states to raise a child with autism, we discuss a list of states ranked based on several factors that impact the lives of children with autism and their families.
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A Parent’s Guide To Autism
If your child has recently been diagnosed with an autism spectrum disorder, you have come to the right place.
A Parents Guide to Autism was developed as part of Autism Speaks series of Family Support Tool Kits to support you and promote a positive future for your child and family during an often challenging time.
You are not alone in this journey and this guide is a step toward finding the help you need to travel the road to optimal outcomes for you, your child and your family.
- Your Role as a Parent
- Ten Things a Parent Can Do to Help their Child with Autism
- Building a Support Network
- Personal Story: How I Let Go of My Expectations and Learned Unconditional Love
- Frequently Asked Questions
Amazing Autism Resources For Parents
Parenting a child with autism can feel isolating, even when youre surrounded by people who love and care about you. The truth is, 1 in 44 children is living with ASD or some form of neurodivergence today. Slowly but surely, the world is shifting to create accessible systems and supports for the many, many parents of children with autism who need resources.
If youre still feeling alone on your Autism parenting journey, it might be because you havent discovered the right resources yet. You would do anything to help your child gain access to the services that they need to succeed why not extend that kindness to yourself?
Weve made it our priority to make life easier for parents of autistic and neurodiverse children. We believe that parents deserve to feel heard, seen, and supported. Give your kiddo the tools to be independent and yourself the space to be a parent.
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Wrightslaw Special Education Law And Advocacy
A great site for accurate, reliable information about special education law, education law, and advocacy for children with disabilities. Early intervention is invaluable because it links parents to services in the community, but it can be hard to find services without a long waiting list. Families can search on their own for providers using the Wrightslaw Yellow Pages for Kids With Disabilities.
Support For Families Of Children With Disabilities
Support for Families of Children with Disabilities offers information, education, and parent-to-parent support free of charge to families and professionals of children with any kind of disability or special health care need in San Francisco. They provide support groups, educational workshops, mentors, social work services, and more. On their site, youll find events for your whole family as well as information on how you can get involved with their mission.
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Sesame Street And Autism: See Amazing In All Children
Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. The project also fosters an affirming narrative around autism for all families and kids.
What Types Of Skills Will You Learn In This Program
When you access our autism parent training program, youll learn a range of skills that you can use when youre at home with your child. We offer a range of interactive models and discussion-based techniques, giving you the skills that you need to parent your child in a safe and engaging way. Some of the skills that youll learn in our program include:
- Managing adverse behaviors: Many children with autism struggle with disruptive behaviors. We can help you avoid these behaviors and handle them when they do arise.
- Addressing problems that arise: We can help you interact with your child in and outside the home and communicate with your child in a healthier way.
- Providing coping skills: When your child has to take part in activities outside of their routine, they may struggle to cope. Our program provides you with practical approaches to supporting your child so that they can cope effectively.
- Improved independence: Many children with autism dont have the life skills and self-sufficiency that their copatriots without autism do. We can help you instill these strategies in your child so that they can be more independent.
- Encouraging healthy play: Many children with autism dont have the play skills that many other children display. Well teach you how to encourage your child to play in a range of ways so that they can have the healthy, happy childhood you want for them.
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Ambitious About Autism: Right From The Start Toolkit
Ambitious about Autism is the national charity for children and young people with autism. Their Right from the Start Toolkit is a free downloadable resources for parents/carers who think their child has autism, or whose child has recently been diagnosed. It contains a wealth of straightforward information in one place to guide parents and carers through their childs journey in the early years. From the autism assessment process to the first day of school, this toolkit is packed with practical tips and checklists to support parents during the earliest years of their childs life. It also provides signposts to sources of support or additional information.
Medical Testing And Treatments
Routine medical tests are usually performed by traditional pediatricians, but these exams rarely reveal underlying medical problems that are often associated with autism, such as gastrointestinal problems, nutritional and metabolic deficiencies, toxic metal burden, and immune dysfunction. Unfortunately, many physicians believe, though incorrectly, that the only useful medical treatments are psychiatric medications to reduce seizures and behavioral problems.
Genetic testing for Fragile X syndrome can help identify one possible cause, and this testing is typically recommended when there is IDD in the family history.
The Autism Research Institute supports an integrative medical approach to treating individuals on the autism spectrum. This approaches often includes:
- Thorough medical evaluation for undetected underlying disease
- Nutritional support
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Autism Schools And Education Facilities The Ultimate Guide
Autism Parenting Magazine
Looking for a school for your ASD child? We know every child on the spectrum learns differently, so weve created this ultimate guide to help parents find the right school to give their children the support they need.
Homeschooling is becoming a popular option among parents with children on the spectrum, in this article we discuss the things you need to know
Golden Gate Regional Center
Golden Gate Regional Center provides services and supports to individuals with developmental disabilities in Marin, San Francisco, and San Mateo counties. They assist individuals and their families with accessing the services they need to lead more independent, fulfilling lives. GGRC provides case management and advocacy for families and individuals who have developmental disabilities or developmental delays.
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Autism Potty Training The Ultimate Guide
Autism Parenting Magazine
Potty Training is a big challenge for parents with children on the spectrum. This guide gives you everything you need to know about toilet training, including knowing the issues you may encounter, how to prepare your child, steps in the process, additional tips, and more.
Autism Resources For Adults On The Spectrum
Whether youve been recently diagnosed or years into living with autism, these organizations and tools can help you navigate adulthood.
Autism Speaks Tools for Adults: This page is geared toward adults on the spectrum who are age 22 and older. It includes blog posts and toolkits covering a range of topics, including financial planning and employment.
Autism Self Advocacy Network: This organization provide advocacy tools and educational resources for people with autism.
Hire Autism: An online tool that helps adults with autism find jobs.
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Is Your Child Covered By Medicaid Insurance
Contact your local Community Mental Health to access Applied Behavior Analysis, speech therapy, psychological, or other services.
Ask anyone who is working with your child how you can teach and support your child at home. Use goals and strategies taught at school and in therapy during your daily routines.
Connect with your local autism support group. Also be sure to take care of yourself and your family. This might include seeking parent training or sibling support groups.
Healthcare And Education Professionals: Certifiedautismcentercom
CertifiedAutismCenter.com is a resource meant for parents and individuals with autism that helps them find certified and trusted healthcare and education providers.
This resource connects families with healthcare professionals in a plethora of specialties including mental health, occupational therapy, and speech therapy, behavior interventions, and other specialties, all through a simple search
The Certified Autism Centers and professionals found on this website have completed professional training and certification in autism and have made an ongoing commitment to education in cognitive health and sensory disorders. CACs are certified by IBCCES and the program is endorsed by the Autism Society.
IBCCES has been training and certifying professionals around the world since 2001. The impact has been incredible. Currently, over 34,000 professionals have been trained, 1,400,000 clients and students have been served by certified professionals, and 59,100,000 families and individuals have been impacted.
On this website parents will not only find credible centers and professionals, but also an extensive collection of IBCCES-reviewed resources.
To find a local CAC click here.
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Excellent Ways To Create A Peaceful And Calming Bedroom Space
Autism Parenting Magazine
A licensed interior designer provides excellent advice for creating a calming bedroom space for children on the spectrum through the use of color, texture, and furniture placement.
Is it a struggle for your child with autism to relax and fall asleep? A therapeutic weighted blanket, also known as a sensory blanket, may be what your child needs to help reduce anxiety.
Preparing For The Future
Temple Grandin: As a person with autism I want to emphasize the importance of developing the childs talents. Skills are often uneven in autism, and a child may be good at one thing and poor at another. I had talent in drawing, and this talent later developed into a career in designing cattle-handling systems for major beef companies. Too often there is too much emphasis on deficits and not enough emphasis on talents. Abilities in children with autism will vary greatly, and many individuals will function at a lower level than me. However, developing talents and improving skills will benefit all. If a child becomes fixated on trains, then use the great motivation of that fixation to motivate learning other skills. For example, use a book about trains to teach reading, use calculating the speed of a train to teach math, and encourage an interest in history by studying the history of the railroads.
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Orientation To The Ontario Autism Program
At this workshop, you can:
- learn about changes to the Ontario Autism Program, including what they are and how they may affect you and your family
- get information about Autism Ontarios service navigation program, which can help you navigate the Ontario Autism Program
- connect with other families with similar experiences to share information and feel supported.
Great Resources For Parents Of Children With Autism
According to the latest statistics, 1 in 88 children are on the autistic spectrum, including 1 in 54 boys. Its a disorder thats still not entirely understood, and even within the community of parents of children with autism and educators who work with them, there are still disagreements about what therapies and treatments work best. For parents, finding ways to help with everything from diagnosis to coping is vital.
If your child has just been diagnosed with autism and you’re not sure where to start, we have the sources for you. And whether you’re looking for medical information, camaraderie, expert advice, autism-specific toys, best vacation plans for traveling with a child with autism, or just a shoulder to cry on, we have that resource as well. From national organizations to parent-written blogs to scholarship opportunities and even resources for siblings, we’ve put together a list of the 10 best autism resources:
The site’s founders have a grandchild with autism, and the site has research, family services, and advocacy. All in one convenient location.
This site connects families to groups both online and in their area that can offer support.
This site aggregates news from the web and specifically sorts by category. It’s a one-stop shop for any and all autism news.
MyAutismTeam is a social network for parents of kids with autism.
Care.com is a great place to find a caregiver.
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