Ellen Keane Asat Parent
Chapel Haven taught my son how to live his own independent and productive life, developing the confidence and providing the experience he lacked. He needed the opportunities, curriculum and community to develop his personal skills. He now has his own apartment in New Haven and has maturity that would have seemed impossible before he enrolled.
Early Signs Of Autism
The following are a few signs that a child may have autism. None of these symptoms guarantee that a child has autism, but a combination of them may point to certain issues that should be addressed by a medical professional:
- No big smiles or warm facial expressions by the time they are six months or older.
- No back-and-forth sharing of sounds, smiles, or other facial expressions by the time they are nine months or older.
- No babbling by the time they are twelve months or older.
- No back-and-forth gestures such as pointing, showing, reaching, or waving by the time they are twelve months or older.
- No words are spoken by the time they are 16 months or older.
- No meaningful, two-word phrases by the time they are 24 months or older.
- Any loss of speech, babbling, or social skills at any age.
These are some of the most common signs of autism in very young children. There are other explanations for some of these conditions, but the presence of any of these signs warrants a visit to a pediatrician or doctor for examination.
Read on to learn about the 15 US states with the highest autism rates. This list was compiled by The Los Angeles Times and includes a list of the top 15 states and services they provide for the autistic population.
Slow Progress Towards Better Access To Medical And Clinical Services
Access to medical and clinical services was directly related to overall satisfaction with services in the local community. Among negative responders, 75% reported they could not access medical and clinical services conversely, 83% of positive responders reported good access to medical and clinical services.
The need for improved access to medical and clinical services was clearly established in the 2005-2006 National Survey of Children with Special Health Care Needs published in Pediatrics , which found that children with autism spectrum disorders have more difficulties accessing medical care and more unmet needs than other children with special health care needs, said Dan Coury, M.D., Medical Director for the Autism Treatment Network. These survey findings demonstrate that this problem of access to satisfactory clinical or medical services persists, continued Coury. We know that many physicians are uncertain regarding what constitutes appropriate medical management.
Five of the 10 best places are in states that have enacted autism insurance reform . The other five states have bills that have been endorsed by Autism Speaks or have legislation pending introduction. Our fight to reform state insurance laws is an effort to ensure that thousands of families dont have to pay out-of-pocket for a diagnosis, treatments and other related care, continued Wright. But these victories arent helping families who dont have access to services in their communities.
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Alignment With Residential Services Guidelines
The National Institute for Health and Care Excellence autism guidelines advises that the residential environment should be structured to support and maintain a collaborative approach between the autistic person and their family, partner or carer for the development and maintenance of interpersonal and community living skills . The NICE guidelines also concern the residential care activities, care environments and care staff characteristics. The present study investigated the user and professionals experiences around these aspects.
Cohousing Reduces Loneliness & Isolation
Inclusion, especially in housing, is a goal, not a given. It involves educating, campaigning, and raising awareness. It requires us to open our minds and learn from everyone’s story. It begins with an openness to learn, an acceptance that we are all different, and a respect for everyones individuality. Inclusion is a significant aspect of life, and it is an issue that is growing in importance. People with limitations from intellectual developmental disabilities are often excluded from activities or events because they do not fit the ‘norm’ or because others don’t understand them. However, it is not only the right thing to do, but also good for society if we learn to include those with disabilities. We can open ourselves up to new experiences by listening.
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Supportive Employers Make A Difference
Supportive workplaces offering family-friendly policies appeared to be important in overall satisfaction. More than half of those satisfied, overall, with services in their community reported their employers offered essential flexibilities. Even among the not satisfied respondents, 30% cited good employer policies.
However, comments offered by respondents indicate troubling trends with respect to employment. One working parent living apart from their family in another city or state to keep a well-paying job and the need to quit jobs to care for a family member with autism are examples of hardships reported by families. I have had to quit two jobs because they could not accommodate my hours so I could be there for my daughter when I was needed, and I am now unemployed again, said one mother from Houtzdale, Pennsylvania. Wrote another from Akron Ohio, My employer wanted me overtime I needed more time off to take my son to therapy. I ended up saving money quit and I am back at school for a degree in speech therapy, so I can teach my son and no longer be dependent on others who arent personally concerned.
Availability Of And Preferences For Services
Among respondents, 14.5% of adults , or someone for the adult, and 24.2% of carers tried to get a residential service at some time in the last 2 years but failed while 29.1% of adults and 48.8% of carers reported that they were in a residential service now or had been at some time in the last 2 years . Autistic adults living in Italy and Germany and carers living in Finland and Iceland were those who have tried more often to get residential service and failed .
Figure 1. Services that had been applied for but failed to get or Services got reported by autistic adults and carers. Values expressed as percentages. Shown in the text boxes are the most frequently selected specific service option within each service area reported by autistic adults and carers of high independent adults and low independence adults .
About 40.5% of adults but a lower percentage of carers were satisfied with the residential service they currently had .
For autistic adult respondents, help in own home was by far the most frequent residential service: over 41.1% of adults who tried but failed to get a residential service in the last 2 years, were trying to get help in own home 53.1% of adults who had a residential service in the last 2 years had help in own home service . The most frequent choice by autistic adults for a residential service best suiting their needs now was help in own home .
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Adults Living With Autism Experience Distinct Challenges As They Age Out Of Youth Support Programs
If youve met one person with autism, then youve met one person with autism.
This phrase is said often within the Autism Spectrum Disorder community, often with a knowing smile from both the speaker and listener. The middle word in Autism Spectrum Disorder is a very apt choice in the name, for individuals living with autism can have a wide range of possible features.
Diagnostically speaking, autism has three levels, with level one requiring some additional support and level three requiring very substantial support. However, many experts within the community discourage putting too much focus on level and instead emphasize helping each individual person.
The Autism Speaks website says that ASD refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. Signs of autism may include difficulty interpreting social interactions, trouble with planning and organization, frequent repetitive conduct, narrow and strong interests, distress over change, and deficits in verbal communication. An individual certainly does not need all or even most to receive an autism diagnosis.
Haley Fredericks, a 30-year-old Appleton resident who loves storytelling and prides herself on being insightful, says, For me, being autistic is like being plunked down on an alien planet with a culture and social norms constructs beyond understanding, yet being forced to wear a mask and blend in with them.
These Are The Best And Worst States For Raising A Child With Autism
According to the CDC, around 1 in 54 kids in America have been diagnosed with Autism Spectrum Disorder . When it comes to raising a child thats been diagnosed with ASD, there are a lot of factors parents need to take into consideration, including schools and sensory gyms, monetary and legal aid parents may be provided, grants available to families, whether state laws require insurance coverage, whether the state is part of the Autism and Developmental Disabilities Monitoring Network and more. Many, if not all of these resources are dependent on the state one lives in.
To help parents, Autism Parenting Magazine put together a guide based on their research of the best states to raise a child with autism, as well as the states that offered the least support. Of the states, seven were located on the west coast. Colorado was found to be the best state, while Virginia was found to offer the least support. Below, each list, based on their research.
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Housing Complex Would Integrate Residents With Special Needs Into The Larger Community
Susan Wallitsch is the primary caregiver for her 27-year-old son Frank, who is autistic and functionally nonverbal. A few years ago, when she had a health crisis and was temporarily unable to care for him, the solutions she found were limited and troubling.
She could look for a group home but most have long waiting lists and would likely not accept Frank because he has behavior problems. She could apply for funding to put him in his own apartment with a 24-hour caregiver but in that kind of isolated situation, the rate of abuse for adults with developmental disabilities is alarmingly high. Or, she was told, you take him to the police station and you drop him off and you leave him.
Those stark scenarios underlined the agonizing dilemma that parents of severely autistic children face: As they contemplate their own old age and mortality, they dont know what will happen to the children theyve spent their lives caring for.
They took the idea, which they called Home Of Our Own, to a local affordable housing developer, Wisconsin Housing Preservation Corp., which agreed to kick in $500,000, secured an option on a six-acre parcel and retained architects to draw up a plan. They have applied for a low-income tax credit program, and the families are fundraising to try to gather another $500,000 toward the projects estimated $8 million cost.
Quality Of Life Points: 3333
- Special-Education Teachers per 1,000 School-Aged People with Disabilities: Full Weight
- Graduation Rate for Students with Disabilities: Half* Weight
- Wheelchair-Accessible Restaurants per Capita**: Full Weight
- Wheelchair-Accessible Grocery Stores per Capita**: Full Weight
- Wheelchair-Accessible Art, Entertainment & Recreational Establishments per Capita**: Full Weight
- Wheelchair-Accessible Trails per Capita**: Half* Weight
- Walkability: Full Weight
- Effectiveness of State Medicaid Programs: Full* Weight Note: This metric is based on the annual ranking of how well state Medicaid programs serve Americans with intellectual and developmental disabilities .
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Best Places To Live With Autism
A survey released Friday by Autism Speaks, the worlds largest autism science and advocacy organization, names the top 10 best places to live if you have autism.
The top place was New York City, closely followed by Los Angeles, Milwaukee, Cleveland and Boston. Other honorable mentions include Northern New Jersey, Minneapolis, St. Paul, Seattle and Milwaukee. The criteria for the survey included the satisfaction of the availability of services and resources, the proximity of services to where they live, flexible employer policies, access to clinical/medical care and recreational opportunities.
The survey also revealed the states where communities were unhappy about local autism resources, or the lack thereof, including Texas, Virginia, Tennessee, Ohio, Florida, Michigan and California.
Nearly 75 percent of respondents were not satisfied with their communitys resources and services for autism.
These survey results confirm what we hear every day from families that they are struggling to get their children services that are essential to their development and well-being, said Bob Wright, co-founder of Autism Speaks, in a press release.
Autism is a complex neurobiological disorder that can inhibit a person’s ability to communicate and develop social relationships, and can be accompanied by behavioral challenges. The prevalence of autism increased 57 percent from 2002 to 2006.
Recruitment And Survey Distribution
All ASDEU partners sent out survey invitations to participate to autism organizations and service provider organizations . Furthermore, these organizations were asked to share the survey links through their channels . Also, the investigators at each site disseminated the surveys through their professional networks and on social media.
The survey was available online over 10.5 months in 2017. In mid-February, it was launched in three languages and by mid-September 2017, in eight additional languages data for the analysis were collected until December 2017.
Each ASDEU site obtained local ethical approval before distributing the survey in their respective countries. All procedures were in accordance with the ethical standards of the institutional and/or national research committee. Responders read the information about the survey prior to start and gave their informed consent electronically. Personal identifying information was not collected. Data were analyzed in aggregated form.
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Best And Worst Places To Live For People With Disabilities
Congrats to the Heartland of America! According to an analysis by consumer finance website WalletHub, Overland Park, Kansas tops the chart as the best place to live for the disability community.
The cities of Scottsdale and Peoria, Arizona and Tampa and St. Petersburg, Florida rounded out the Top Five. But how does your hometown stack up? Comment below if you agree or disagree!
What Programs Are There For Adults With Autism
There are several programs for autistic adults that are available to help them in their employment, businesses, and family life. These adult programs are specifically designed to teach individuals with autism with important life skills that will help them in thriving in this competitive world throughout their adult life and become an effective part of the community.
As children with autism have special needs, as they step into their adult life they encounter several challenges and barriers in their day-to-day lives. These programs are meant to provide adult services, helping young adults in finding a job, residential support for independent living skills, financial assistance, day programs, recreational and community programs, and therapies.
Many families also receive government money for adult foster care services for the families of the individuals with ASD, which is intended to be as permanent as it is possible.
The Autism support centers also offer workshops, activities, training to help in connecting the families, creating an autism society that helps them to enable the children and adults with autism to become valuable members of the community.
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Updates On Communities With Disabilities
According to the website Abilities, and a thorough analysis compiled by the consumer finance website WalletHub, Overland Park, Kansas tops the chart as the best place to live for the disability community. The top five list is completed by the cities of Scottsdale and Peoria, Arizona and Tampa and St. Petersburg, Florida.
The analysis considered the three most important factors for a disabled person: economic environment, quality of life, and healthcare conditions. The cities mentioned above showcase the great potential in terms of employment rate, median income, and openness of the job market. When considering moving to a disability-friendly city, you might want to try one of the top five out while also getting help from agents that specialize in homes for the disabled. Your offspring with unique needs can surely adapt to an environment that obviously made such significant progress in this field.
Educational Guarantees Are Not Evident
Most respondents said that educational services were available in their community, however, there was significant inconsistency on the quality and level of services. Of those who had a positive view of their communities services, 95% reported that their school-aged child received appropriate educational services. However that fell dramatically to only 57% among those who were not satisfied with availability of educational services in their community. Even more compelling was the fight that was required so often to obtain educational supports. Among positive respondents, almost a quarter reported it was hard to obtain those educational services. For families generally unhappy with supports in their community, an incredible 83% described just how hard it was to access educational services. Families told of needing to find specialized experts to best place their child, needing to change schools or districts, or having to resort to expensive legal action.
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Survey Development And Description
The ASDEU project conducted a survey on services based, in part, on a variety of published guidelines and recommendations regarding services for autistic adults . The three versions of the survey targeted autistic adults family/caregivers of autistic adults and administrators/professionals/service providers for adults. Experts in all ASDEU sites reviewed the surveys and an autistic adult tested the adult version of the on-line survey. Written instructions were presented to the participants before they filled out the survey. Responders were asked to select answer choices that seemed to suit most closely with what they knew or had experienced and to answer to the best of their knowledge and experience. The survey questions were written using everyday language and avoided technical terms that might not be understood or not applicable across different countries. To ensure the reported information was recent, for each services section, only respondents who had applied for or had the service in the last 2 years were eligible to answer the section questions.
When asked to report availability and preference for services, the survey had two sets of questions for different services situations: whether a respondent had applied for a specific type of service in the last 2 years and failed to get it or received it. Respondents were then asked what type of service would best suit their current needs.